I have been going throught this runaround now since the fall of 1992. I had zero reflexes at wrists, knees and ankles and severely abnormal EMG/Nerve Conduction studies. No one ever thought to check for MGUS, until I found out a number of implanted women were testing positive for this and I insisted the test be run. If I had realized the worry it would cause me, I think I would have just as soon skipped knowing...

Then I had a bone scan done... Sooo... Since I am on steroids, I lose bone mass and have osteopenia/osteoporosis. Guess what you lose when you have Multiple Myeloma... I think the results showed some lytic lesions or something like that, but the Oncologist INSISTS I do not have MM...

I have to go every 6 months. I have already passed "crazy" several times...

Welcome to the club,

Cathie