I don't know the answers to your question(s), but wanted you to know that my heart goes out to you. What horrible experiences! Please consider getting a second opinion and taking top notch care of yourself in general...good nutrition and vitamins, etc. And if depression sets in due to all this stress, please think about seeing a counselor to help get you through this difficult
Period of time. Again, don't hesitate to get more than one opinion and even consider seeing various specialists, like anENT. Hang in there!