Hi everyone, I am 27 yrs and developed rsd this last 2 yrs.
I have it in my face, ears, neck.
I recently had tmj (jaw surgery) and my rsd is very bad.
I go for lidocaine injections, just had a stellete block did not work
Just a month and a half ago my mom and aunt had a screaming match like you could not imagine.
I told them my ears were starting to hurt but they just kept it up.
My ears have always been sensitive because I have had headaches for 6 yrs 24 hrs a day every day. Occipital neuralgia.
Usually if I have an episode with my ears it goes away in a day, but not this time.
It's a deep stabbing pain in the ears and also a pulse sound.
This has just made my neck , face and head worse.
My eyes are killing me. It feels like everything is clogged and wants to explode.
I just want to die. I cannot take this pain anymore.
I went for a ketamine infusion 30mgs when it happened no luck
Then went about 2 weeks after that one my doc upped it to 60mgs no luck.
This week he is going to up it to 120mgs. He does it in his office.
I am hoping it gives me some relief, but not counting on it.
Has anyone had ketamine for rsd?
Has anyone had the one where they put you in the hosp and do the 4 or 5 day protocol?
Would the hospital one give better results.
I am wondering if I go for the one in the office and I go back and have my doc do more days apart would that help?
I just cannot take the pain anymore.
Thanks for listening.
Any feedback would be great
Ashley