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Senior Member
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Join Date: Jan 2010
Location: Illinois
Posts: 1,785
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Senior Member
Join Date: Jan 2010
Location: Illinois
Posts: 1,785
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Ashley,
I just want to say how sorry I am to hear what you are going through. My RSD started when I was 25 too...though I am 29 now. Two years ago...when I was 27...my RSD got much worse and spread. There were many months where I just got worse and worse and worse. It seemed like every day I had a new symptom or the pain spread to a new area. It was very discouraging. I was bounced around from one doc to the next and told by my primary care doctor that I would need to get used to life in the wheel chair. Life was just a nightmare.
Things were just about as bad as they could be for me...but then I changed doctors and things got better. I can't say that my RSD journey is a typical one...I know my choice of doctors and treatments is not standard. I got off all meds, went through physical therapy at home, and through sheer force of will have taken my life back. Still have pain every day...but things have gotten better and I am happy now.
I have not had ketamine infusions, so I am sorry that I cannot give any advice about that. Hopefully someone else can jump in with their experiences on that. I just wanted to say that things can get better and not to give up hope. You've found a great site here with lots of great people. I don't know what I would have done without this forum...the people here have literally saved my life. I have learned so much from everyone here and everything I have learned has helped me in my journey to get to where I am today.
Take care of yourself and ask lots of questions on here. No two experiences are the same and everyone responds differently to different treatments...but that doesn't mean we can't learn from other's stories. Even just knowing you are not alone is a HUGE help...or at least it was for me.
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