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Old 01-07-2013, 05:55 AM
alaska49 alaska49 is offline
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Join Date: May 2009
Location: Pennsylvania
Posts: 221
15 yr Member
alaska49 alaska49 is offline
Member
 
Join Date: May 2009
Location: Pennsylvania
Posts: 221
15 yr Member
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I have had ketmine infusions, I have full body and internal rsd I went through every treatment and seen 191 doctors in 7 states and nothing changed until I had ketmine. I did the in patient and the 10 everyday out patient then it went to 2 times a week for 4 weeks then once a week for a year usually its only for 4 weeks but I was so bad I needed i longer then it went to once evry 3 weeks now I only get them when Iam in a flare. but I also have ketamine nassal spray and lossanges which are a great help to me from going into flares. Iam sorry what your going through I too was at many points I just wanted to die as I couldnt walk, use my hands o f=eat so need feeding tubes I was hospitalized for 5 months before I was airvaced to cleveland.
Stay strong!

Samantha
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