Thanks for the welcome Conductor! I assure you that yours & everyones contribution means more than you will ever know. I think we all have an insatiable appetite for knowledge of anything that may have potential to bring comfort or healing. Just knowing of something that helped someone else can be so encouraging! It's also reassuring that others are trying to help connect the dots! I agree that we definitely need a registry to make research happen faster by connecting us with the research! I did find the following encouraging information **
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