That was exactly what happened to my sister, when she was lying down or sitting, the swelling subsided.
I agree with you on trying EVERYTHING to alleviate the pain. While trying to find the cause of my PN, and believe me, I had all kind of tests but nothing came out of it. I guess when you are just starting with a disease as painful as PN, all your energies and attention are focused on finding the cause/s, treatments/medications. But, at a certain point, when all everything humanly possible has been done and nothing is found out, you will learn to live around with it - not necessarily accept it but maybe live with it.

There are so many things h appening in my body now. I have a lung infection and recently, my PFT showed I have a little of both COPD and Restrictive Lung Disease. I have thyroid problems. For a while, I was hoping that the cause of my PN is my thyroid that once it stabilizes the pain will disappear but, sadly, no. Now that I am taking a cocktail of antibiotics, one side-effect is the absorption of Synthroid. So, aside from dealing with the side effects of the antibiotics, I have now to monitor my TSH, T3 and T4, which are right now going haywired :-(. For a long time after my total thyroidectomy, i was only taking Synthroid but when the T3 became abnormal, the doctor added Cytomel. I will take my test mid January and see the effect of this additional medicine. I discussed with the doctor about the slow-release cytomel, but he told me to give his prescription some time.


Yes, you are right, if its not one thing, its another