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Originally Posted by BetsyAnn
Hello everyone...just saying hello. Not sure where I should look first so here I am  I am a 40 y/o female in sunny FL dx'd with neuropathy, 'seizures' and currently flaring up so feeling rather frustrated.
No clue what the neuropathy is from, EMG showed it in all 4 limbs, and we were trying to find the cause for some autonomic symptoms (elevated HR and BP episodes w/sweating and chills/shaking)...long long story short I was eventually found to have 'abnormal spikes on both sides of the brain' via EEG (both 20 min and 3 day) so neuro says he thinks the spells are seizures.
Currently taking Keppra which seems to work, at least for nerve pains/tingles, and time will tell about the other weirdness 
Right now my knees are tingling, my hands are shocking me every time I grab something, my neck feels like it won't hold my head up anymore and my one eye keeps watering so I'm gonna grab a cup of coffee and browse what you all have got here.
Thanks for being here! |
Hi Betsy Ann- Welcome to Neurotalk, I'm sure you are searching in every direction for some answers. Your symtoms sound like an autonomic dysfunction- the sympathetic nervous system, parasympathetic nervous system, vegas nerve all control blood pressure, heart rate, body temperature, even digestive issues. I have a disorder of the autonomic nervous system-reflex sympathetic dystrophy-RSD or now called CRPS. blood pressure varies from high to low- heart rate varies from high to low- go from hot to ice cold in body-usually burning hot. electrical shocks, tingling. I have it full body or generalized-all limbs. I don't know what all the autonomic disregulations are, but RSD one of them.
I hope this is NOT the case with you. Are you seeing a neurologist? The condition I have is difficult to diagnose and many Drs. are not familiar with it. I my case-it followed an operation. For some it has followed an injury- I hope you get some answers. I'm usually of the Reflex Sympathetic Dystrophy part of NT. Just happened to notice your post. You will find a lot of good information and support on NT. Hope the best for you and you get some answers with good results. loretta