It is very nice to meet you. I was totally captivated by the story of your son. It's always so sad to see someone so young become challenged by a chronic medical condition. But it sounds like your son is really quite a person. It's not easy to remain upbeat and cheerful, and continue to live so normally under those circumstances. And you, too, seem to have handled it all with a lot of courage. Kudos to you both!

I really wish I knew more about that area of medicine, but I simply don't. I sure do wish that your son finds some very good friends, and develops a satisfying social life. He needs to have some fun. Good luck to the both of you, and I promise you that when it comes to support, you will find that on this site. I hope you like it here and decide to stick around.

Idealist