Sure, I am endlessly fascinated by my illness

At any given time, my arms and legs feel tired and heavy, and my neck gets tired quickly. I appear normal, but it takes extra effort to do anything. In the late afternoon and late evening, my legs get weak, and while walking, I tend to collapse into a squatting position. Sometimes the top half of me falls forward, and I sort of bow at the waist. If I trip the slightest bit, or anything throws me off balance, I can't catch myself.

All of this is variable from day to day and week to week, and if I exert myself one day (like going to a department store), I'm weaker for the next few days.

For a long time I used to sway back and forth to the left and right, from the waist up, as I walked, but not any more.

I get "spells" of weakness that last half an hour to an hour in which my legs are too weak to hold me up at all. Sometimes I can crawl, but sometimes my arms are also too weak for that.

That's about all. I've had a few episodes of double vision and no ptosis. Sometimes the weakness is especially concentrated in my neck, and I have to slump back in my chair and rest my head. A week ago it was in my shoulders, and I could hardly make a shrugging motion. I used to lose my balance a lot, but that was when the weakness was mostly in my waist and sides, I think. I had trouble with the muscle in my soft palette for a while, but no more. I sometimes find it tiring to chew, but not usually. I never have breathing trouble, and my speech is normal.

Abby