Quote:
Originally Posted by AnnieB3
Kathie, Have you ever seen a rheumatologist? With the wheezing, coughing and pain, I really wonder if you have some kind of inflammatory condition. You could have MG too. I just wouldn't want you missing anything.
Muscles do become painful if they get too weak. They can also get painful from a Vitamin D deficiency, electrolyte imbalance and other causes too.
If you poke at your muscles, are they generally painful or can you find a "trigger point" that is really painful? If you are generally painful, you probably need a rheumatologist to evaluate you. If it's more targeted pain, it could be from weak muscles, tense muscles or nerve issues. That is something a neurologist should evaluate.
What I do for my pain is get enough sleep, like Cate, take acetaminophen, use massage, get enough Vitamin D3 daily (I was tested and was deficient and continue to run low), use the best posture I can while doing anything and stay well hydrated. The thing with pain is that it is best to nip it in the bud as soon as possible or you can get into "cyclic pain." Physical therapy works wonders! My B12 deficiency caused such horrific nerve pain.
What is funny is that I was just watching Dr. Oz and he was talking about natural ways to combat pain! Cherries, for example. See his site from today for any info.
Pain should always be evaluated because there are so many potential causes of it. It's a very hard thing to live with.
Annie
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Thanks again Annie, I have been to a rheumatolist, he thought it was MG. I first went to an allergist/pulmonary doctor who said she though all my symptoms were multiple auto-immune issues. She sent me to a dermatologist and the rheumotologist, Rheumtologist thought it was MG and sent me to the neurologist. Neurologist thought it was MS, MRI and all antibodies came back negative, so he said it was not MS or MG. Diagnosed optic neuritis and put me on anti-inflamatories and suggested it may be another auto-immune disease and suggested I go back to the GI and rheumatologist. I was still experiencing the eye issues and several member here suggested I see a neuro-optomologist. So I went to Wills Eye hospital in Philly. Neuro optomologist said he thought it was MG. I could not hold an upward gaze and my right eye went its own way during the exam and my speech went slurry. He orderred more antibody test and the sfemg. Antibodies are still negative and still waiting (6 months) on the sfemg.
I have had asthma all my life. I also have eczema. The gastro problems I have had since I was 5 and I think it may be Chrons. It is the chronic fatigue and muscle weakness which most affects my quality of life at the moment.
My vitamin D level is good. The pain is not a specific spot. It is generalized achiness is which ever muscle are weakest that day. Usually always the right hips and thigh, sometimes the pectorals, deltoid, latts. It is a really bad day when it goes to the calf and lower arms.
I think it is more then 1 auto-immune, but it is the MG-like symptoms I need to get under control. I think my muscles are overworked everyday. I am still working full time, and doing all my regular chores. Without a definite diagnosis, I feel foolish in making major changes in my life such as cutting down my work week or selling my 2 story home, etc..
thanks
kathie