Quote:
Originally Posted by AnnieB3
Kathie, Duh, I forgot how much doctoring you've already done.
Here, this is from my book for you. We really need centers where undiagnosed patients can go.
"Sending undiagnosed patients all over town, from specialist to specialist, as if we’re on a health care scavenger hunt, is a ridiculous way to conduct good health care. It doesn’t make good business sense either. I’m willing to bet that, for most of you doctors, playing Ping-Pong™ with a patient’s care is definitely not as much fun as playing for a doctoring team would be."
Hang in there.
Annie
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Thanks Annie, If it wasn't for a very caring GP and the support of this forum, I think I might have given up by now. But I am stubborn Irish trid is trid (through and through) as my mother would have said and I will persevere.
With the warmer weather, I am just having a bad week. If my symptoms worsen before the SFemg in June, I am planning to go down to John Hopkins. It is the not knowing and not being able to make a workable life plan ( reduce work hours, more accommodating housing, etc) as well as no medication to help, that make the day to day reality worse. And I guess my fall a couple of weeks ago gave me a realty wake-up call.
thanks,
kathie
kathie