Senior Member
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Join Date: Apr 2009
Location: Stafford, UK
Posts: 1,059
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Senior Member
Join Date: Apr 2009
Location: Stafford, UK
Posts: 1,059
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VICTORIALOU,
I like your approach: do due diligence, take full resposibility for your own actions.
Reading your post the following details jumped out of the page: 16 years post DX, workload, 400 mg / day levodopa.
Whether it's the ibuprofen or not I have no idea, but you appear to be doing something right.
Please forgive me if I ask a few questions, but I'd like to get a better idea of your apparently slow rate of progression.
Do you take agonists as well?
At what age were you diagnosed?
What's the furthest you've walked in a day in the last year?
(As a comparison, I'm nearly 8 years post diagnosis, unable to work, 300 mg levodopa plus 16 mg ropinirole per day, diagnosed at 49, 10 miles in a day [my lower body is less affected than my upper body]).
Talking generally, this experience goes to show the need for good progression stats, so we can make comparisons. It also shows the need to aggregate experiences; between us, are there 5 good experiences of ibuprofen or 1 good experience and 5 bad?
John
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Born 1955. Diagnosed PD 2005.
Meds 2010-Nov 2016: Stalevo(75 mg) x 4, ropinirole xl 16 mg, rasagiline 1 mg
Current meds: Stalevo(75 mg) x 5, ropinirole xl 8 mg, rasagiline 1 mg
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