My 14 yo daughter with full body rsd has had severe migraines and nausea for several months, had a few treatments of DHE in the hospital and missed most of her freshman year. Her neuro suggested a procedure of combined occipital nerve/supraorbital nerve stimulation. Basically implanting a battery pack in her hip, running leads up the back, neck, side of the skull to the forehead delivering a charge to stop the pain. Claiming an 80% success rate. First step is to test it with leads in the forehead and external battery pack, then permanent implant if it works.

We have to do something, between the RSD and migraines she rarely leaves the house anymore. At least if we can get the migraines gone, she can usually deal with the RSD and make it to school most days.

But, I'm really concerned about the incisions to implant the battery, runnning leads under the skin all the way up her back, and how it's going to impact the RSD.

Anyone hear of this process? Any thoughts on the surgery and RSD?

I can't post a link yet, but if you google Reed migraine you'll see the procedure.

Mike