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Member
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Join Date: Sep 2006
Location: near Allentown, PA
Posts: 209
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Member
Join Date: Sep 2006
Location: near Allentown, PA
Posts: 209
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i don't have any facts on this, but i do have 2 comments:
my mother had trigeminal neuralgia (like rsd of the face).
several years ago i was at a seminar about rsd and one of the speakers was a doctor who has a huge rsd patient list....he's a family doc, but very knowledgeable about rsd and very good and the word just spread, so he ended up with all these rsd folks....he said at the time that he wasn't aware of any research being done on the topic, but was personally convinced that there was some genetic link.....he had several related patients....a mother/daughter combo, one niece/uncle, 2 sisters and so on....i may not have the details right, but i do remember hearing him talk about how many familial cases he had.
wish i had more info for u.
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best to all,
liz
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