Hi , am so sorry about your daughter. I also have full body rsd-since 1996 but am in my 60's - also have trigeminal nerve pain. Please research the implant procedure for rsd patients. There is a lot of good information on this forum. I know ones with more experience than I will direct you to where to look. I know the head pain is horrendous. Keep posting and let us know how your daughter is. There are other parents who have posted here. Am sure you will get lots of good support to help YOU and help you support your daughter. loretta