Quote:
Originally Posted by cait24
The waiting game seems endless. Sorry, I just had to vent. It scarce me to think that a temperature change like that can trigger such an exaccerbation.
kathie
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I agree and I find that it´s really odd that slight temperature changes can have that much power exacerbating or alleviating symptoms in either direction.
We have frozen lakes to ice skate on at the moment and the ski season has just started.
We don´t expect any lukewarm temperatures before May. I will be interested to see how the warmer weather affects me because the cold worked like Mestinon in November!
I used to loose half a day´s energy in a hot shower and get very myasthenic limbs afterwards, or get ill for 2 whole days after riding a couple of minutes in my older parent-in-law´s car - especially with that warm circulating air necessary for them - but disastrous for me!
During a CT scan a few year ago it was incredibly hot in the room even with all the fans. I could see it coming and managed to prevent a huge flare up by telling the technicians. They immediately opened all six windows which was very kind and it proactively saved my b*tt
Last summer´s heat seemed to trigger lots of double vision and some other newer milder symptoms.
I am very interested to see if my predictions are right despite new symptoms I´ve been feeling better
very gradually since worst peak some years ago. So I wonder if the heat may trigger
less this summer - or perhaps even, not at all.
Please stay COOL

- even in the shower, OK?!!!


