Member
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Join Date: Dec 2010
Posts: 166
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Member
Join Date: Dec 2010
Posts: 166
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The ER can't help you. The are there for emergencies, not chronic conditions. When they see you, they are thinking, what do I need to do to save this person's life today, stop the bleeding, heart attack, set the broken bone, etc. This is an ongoing problem you've already been to the ER for. They are not going to fix it.
I get this same exact thing and have had it since before I got diagnosed with MG. It is very unsettling. I take Mestinon right before bed. If you are super concerned, set your alarm and get up and take another dose at a scheduled time. That's the best you can do. I would feel my throat literally lift up/ open up when the Mestinon kicked in.
I also found sleeping on my side made it a LOT better. Those two things usually did the trick. Other than that, I developed a bad snore.
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