Originally Posted by Julie K

I would like to know if there is anyone out there with neuropathy as severe or more severe than mine? And if you know what it is caused from?

I was diagnoised only three years ago with neuropathy but my doctors have not been able to determine the cause. My neuropathy is so severe I am in constant pain. I am numb from my calfs down. My knees and upper legs burn. My hands are in severe pain top and bottom with parts of my fingers starting to go numb. Sometimes my arms and face burn too. And this is with medications. My doctor says we cannot kill the pain completely. Only try to make it tolorable with the least amount of side affects.

My doctors have not been able to determine what is causing my neuropathy and I am getting scared as to how far this is going to go. How long am I going to be able to push myself to go to work everyday? Some days I cry my way through the day. If anyone who has neuropathy this bad, are they on disability? I am not a quiter and I am afraid of letting my spouse down if I say I can't work anymore.

I really would like to know if others are this bad and how they are handling it.