Senior Member
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Join Date: Dec 2008
Location: Rhode Island
Posts: 1,056
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Senior Member
Join Date: Dec 2008
Location: Rhode Island
Posts: 1,056
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There is a group on Facebook called the Coalition for Pediatric Pain. Lots of knowledgeable, wonderful parents like yourself that struggle with the same issue. I highly recommend touching base with them...
Generally, invasive treatments tend to make RSD worse in the long run gor many patients. There is a risk of complications from infection, spread, etc.
Have you considered ketamine?
All the best to you.
Sandy
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