Member
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Join Date: Sep 2011
Posts: 246
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Member
Join Date: Sep 2011
Posts: 246
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Flo53
You must be aware that there are people who post and read here who are in absolute misery and desperation. Many are depressed, some are suicidal and feel unable to cope, many are frightened and struggling and all are in unrelenting pain. Many of us have much greater experience with this condition than yourself as you say you have only had it a year. It is entirely possible your body is simply making its own slow recovery without any of the things you think work actually contributing to that.
To appear out of nowhere with no previous posting history and tell people that you are involved in a trial of the next great super-safe cure for CRPS but without giving full disclosure and information about that is cruel and unfair. It preys upon the desperate and the vulnerable people.
I am not suggesting you are one, but this board has seen people 'planted' here to promote various untested and 'out there' supposed cures which make all kinds of claims about their testing and clinical trials which don't stand up to scrutiny. This is just a way for unscrupulous people to make money out of suffering and desperation. Usually these devices and 'treatments' turn out to be bogus or the clinical trials don't exist or are so badly done they are worthless.
Your unorthodox views about medication demonstrate a very narrow minded understanding of the severity of this condition and the extreme disability it can bring. For many CRPS patients, it is only prescribed medication that makes their quality of life bearable enough to go on. For others, it is invasive intervention and medication that is likely to prevent the severity of their pain getting worse. You can't say " pain meds mess people up". There can be side effects but not always and these are in each case weighed up by each individual.
Your advice for recovery isn't supported by any reputable evidence. It's fine for you to think its the way to go but don't ram it at other people who are coping on tried and tested regimes for CRPS as the only way to go.
I'm not trying to be mean to you but you have been insensitive to the other users of these boards and not very mindful of what life with long term CRPS is actually like for the vast majority of people who post here. Please think about that before you post any more 'tantalising' cure information without telling people exactly what the device is/what it's supposed to do.
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