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Member
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Join Date: Oct 2011
Location: Las Vegas, NV
Posts: 756
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Member
Join Date: Oct 2011
Location: Las Vegas, NV
Posts: 756
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How do you get help for anything else once you've been diagnosed with a TBI?
TBI and PCS has many symptoms that overlap with other diseases/disorders. So, let's say one of us develops a liver disease or some other type of disorder that effects cognition, gives you headaches, makes you dizzy, etc. Once you tell the doctor you've suffered a TBI, they don't bother looking into any other possible causes. The blame goes straight to the head injury!
This is the problem I'm having now. I never recovered from my injury, it has just gotten worse over time. My good days are few and far between, and getting worse all the time. My bad days are pretty much 90% of the time and they are becoming more and more intense. When I mention this to doctors, especially ones at the ER, they immediately tell me it's common symptoms of TBI.
I just want to kick them in the face.
Luckily, my PCP is willing to work with me and agrees there is a problem if no improvement has taken place in over a year and a half. I'm finally going for a full panel of blood/urine tests. I am effin ecstatic to finally get some help.
So, for the people out there who have trouble getting help from their doctors due to a diagnosis of TBI, concussion or anxiety....
I feel your pain.
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What happened: I was randomly assaulted from behind in June of 2011. I was knocked unconscious for an unknown amount of time (less than 30 minutes) and have no memory of the event. CT scan showed contusion and hematoma of the left frontal lobe. I spent 3 days in the hospital. Diagnosed with Post-Concussion Syndrome in September 2011. Currently have Medicaid, Medicare and SSI.
Current symptoms: Brain fog, mild memory issues, problems with spontaneity, occasional spacing out, word finding difficulties, tinnitus in right ear and some other things that I can't explain.
Life after the brain injury: 4 years after the injury, I'm engaged to my beautiful girlfriend of 5 years, I'm the CEO of my own business, Notorious Labs, I've taught myself how to program complex games and apps which is a feat I never thought I'd accomplish and now live a semi-normal life with very mild PCS symptoms.
Slowly but surely regaining my life back.
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