EDSS is used a a tool in giving a picture of level of disability on the day it is evaluated (although some MDs use it to capture the overall status status of a patient) - usually something in noted a medical records or trial paperwork- but often not stated outright to a patient (according to my neuro & neuroPT). It can change up or down over time - thus it helps show worsening or improvement.

I am a 6.5 but my doc said there is a big jump between 6.5 and 7 on the scale and I would be about a 6 3/4 (if it existed) LOL He also said not to worry about it, as I am who I am, not merely a number on some scale {gotta love him for saying that!}. If you were to ask me what I am I would say:

one heck of a nice gal; charming, witty, extremely good looking & modest to a fault