Hi NeuroTalk. I originally wrote this post somewhere else on the site, but one of your kind posters said I should redirect this to the myasthenia gravis forum (thanks mrsD - can we refer to a poster in a thread?). I have related to so many of your ordeals and I felt like it was time for me to post. I'll make this as short as possible. I entered the hospital in March when I had a 'Peripheral Neuropathy' in my feet on March 30th, 2012. I was told that it was either due to Guillain Barre or Disulfiram Toxicity. Due to the EMG results my Neurologist felt it was most likely due to Disulfiram Toxicity and I was not treated. Most of my symptoms went away (minus the movement in my toes) and I was able to climb a 15,000 foot mountain in October, I'm 30 and in fairly decent shape.

Around Thanksgiving all of my symptoms came back, but worse. I have weakness all over. I am exhausted. But recently I have noticed I can't move my forehead voluntarily, it does move involuntarily but very weakly. It's so strange. The thing that I want to know if anyone can relate to is my breathing issues. At first I was struggling to get a full breath. Now I have these throat spasms, they sort of exist below my chin and in my throat. It isn't very bad when I am at rest, I only really notice it when I am walking or talking, but it is really frustrating. I haven't found anything on the message boards about this and was wondering if anyone else has experienced this. My voice also sort of changes when I'm talking with the spasms... it sounds like I drank a ton of milk or something.

Other symptoms I have experienced, I have found I have a hard time biting into a sandwich. Not a small PB&J type sandwich, but a sub or something. Meat is hard to chew. No swallowing problems. I have not had any pain issues except for two strange ones. The first one is occasionally (and always after I fly) my calves hurt and get hard - so hard that it was noticeable to my Neurologist. Secondly I have nerve pain in my toes - it's strange, like regular touch is fine, but soft touch drives me crazy. I'm sensitive to temperature.

A few more symptoms. Vision - ugh. I don't know if I have drooping eyelids. I believe I do. They're heavy to hold up, but I've not spoken to a doctor about them. I have a really hard time moving my eyes to the left or up. I get double vision to the left and down. I am always in a daze and my vision has absolutely changed, the type on my computer is really big and I struggle to read books (I'm a big reader). I'm considering getting a Kindle and I swore to myself I'd never give in to an electronic reading device, so I sort of hate myself for it...

Anyway... I am currently undiagnosed and am working with a new Neurological team. I was prescribed Valium for the spasms but it doesn't really help. I start seeing the new Neurologist this week, but I was hoping someone else may be able to relate.

Thanks for listening. I wish everyone who reads this all the best, I know that if you are on this board you are struggling as I am.