Thread: Sarcoidosis
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Old 01-19-2013, 04:41 PM
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mrsD mrsD is offline
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mrsD mrsD is offline
Wisest Elder Ever
mrsD's Avatar
 
Join Date: Aug 2006
Location: Great Lakes
Posts: 33,508
15 yr Member
Lightbulb

That sounds awful.

I have a suggestion...ask your doctors if you could have
hereditary angioedema. This has some blood work that can be done.

Sometimes they don't look for everything. Do you take an ACE inhibitor or Angiotensin receptor blocker like Benicar? These can cause bradykinin attacks, with swelling, vomiting, diarrhea etc, pain, and painful joints. There can be swelling of the feet, or hands or anyplace including the lips. There are no hives typically with this, as it is not a histamine response.

Here is a link explaining:
https://docs.google.com/viewer?a=v&q...-YOiVLjSOaauNg

Another:
http://emedicine.medscape.com/article/135604-overview

You can have acquired angioedema, which comes from drugs mostly from ACE inhibitors or the hereditary type, which has "attacks" for most of your life. These can be mis-diagnosed, as other things.
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