I am a new member and have been navigating through for a few days and I am glad joined. It's good to know that I am not alone and there are compassionate knowledable people out there willing to give advice.

In late July beginning of August I started expereiencing tingling on the bottom of my feet while falling asleep then my feet started to get either cold or burning hot. It started to travel up my legs. I saw my first neurologist in the middle of August he performed an EMG which was abnormal. He sent me for extensive bloodwork to test for HIV/Lyme/Vitamin B...and a whole bunch of neuro things ...all came back negative/normal. He then wanted me to see a specialist in NYC. I live in NJ, but decided to seek another neurologist here in NJ. That doctor also performed an EMG which was abnormal she also sent me for bloodwork and also suggested I have ATHENA come to my house to draw blood to test for certain cancers and neuro diseases and of course all tests came back negative. After that I had MRI's done on my brain, cervical, spine and a spinal tap was performed....all normal/negative. From there my second neuro referred me to a neuromuscular specialist. At my first appt after reviewing my chart and tests he diagnosed me with CIDP, but said what was strange is that I never lost strength and on his exam said I was very strong. Another abnormal thing was that I have hyper-reflexes and he stated that people w/ CIDP usually have decreased reflexes or none at all.

The neuromuscular specialist suggested I start IVIG. I have been receiving treatments weekly since the middle of October. I'm not sure why he ordered that I receive every week....from what I've read is that IVIG is usually given first as a loading dose for 4-5 days then every 3 weeks or 2 months. (my short term disability has ended so I am now without a job because I was unable to return back to work because of pain. I am waiting for COBRA to kick in so it has been 2 wks since I've had IVIG)

In November I decided on my own to see a Rheumatologist. She did the trigger point test for Fibro, but I only had a few of the trigger points. She sent me for bloodwork to test for things that I wasn't tested for all normal except for Vit D defficiency. My Vit D value was a 13.

In December the specialist1 wanted to perform another EMG to see if there was any change. There was improvement...on my previous 2 EMG's they were unable to get a response on one specific nerve, but he was able to get a value. He stated that this can be the IVIG working or it could have been the difference in techniques on how my 2 previous EMG's were performed.
I had skin biopsy done on December 24th for
small nerve fiber damage. When the doctor called me with the results he said that it came back abnormal but the values that came back werent that bad. He wants me continue on the IVIG but now every 2 wks and said that hopefully in 5 mos or so I will start to feel better.

It's so fusrating not knowing how this happened and not having a diagnosis. the words " IF you do have CIDP it's a mild case" -- i would like to know if I def have it.

I have tried both Gabapentin and Lyrica, but was unable to get past the starting doses of both due to side effects. My neuro says he doesnt understand why I'm in so much pain and told me that I had to see a Pain Mgmt doctor. The pain Mgmt doctor started me on Cymbalta 30 mg to start for about 2 wks I am now on 60mg for about 3 wks now. I'm not sure if it's even working. The pain specialist also gave me a script for a cream to try on my feet ... it is a mix of Elavil and Ketamine, but it does not help.

Sorry for the long story

I was wondering if you can give me any info or advice on if there are any vitamins/supplements that may help with inflammation and poss help with the repair of nerves . Is there anything I can do to help with fatigue? At this point I am willing to try anything that could possibly help with relieving this pain so I am not depressed every minute of the day !!

my current meds are:
Zoloft (been on for many years)
60 mg Cymbalta
Hydrocodone (when needed/hardly does anything)
Xanax (take a few nights a week to try to fall alseep

Thank you so much and hope to hear from you soon