Member
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Join Date: Oct 2006
Location: Long Island NY
Posts: 765
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Member
Join Date: Oct 2006
Location: Long Island NY
Posts: 765
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Diagnosed with stiff man syndrome?
Due to my full body muscle dystrophy, my neuro doc has done extensive bloodwork. The only thing to come back abnormal was ga65 which is an indicator for stiff man (I am stiff but not sure if this is correct) so the tx he wants to do is an iv of retuxemb..we already tried ivig. Just not sure what to do...
Thoughts?
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