Thank you everyone for your kind replies. I am actually going to see a Rheumatologist tomorrow for the first time, so I will ask her to do the 2 MG antibody tests. I also see a new Neurologist on Tuesday, so I have a lot to think about in regards to what I am going to ask her. I believe they did some tests for MG on me when they did my EMG's because they would do multiple stimulations on the same parts of my leg... but I am not entirely sure, I'm just now learning about MG. Do you know of any other good questions I could ask a Rheumatologist or Neurologist regarding MG?

I was given the Antabuse as a form of Alcohol treatment. It's not prying too much. I was taken off of it when I entered the hospital in March 2012. I was on it for about a year, give or take. Initially a low dose and then increased. I was rediagnosed a couple of weeks ago with Disulfiram Toxicity due to the way my EMG results looked, but I spoke with a Disulfiram Toxicity specialist on the phone and he said it was extremely unlikely for it to go away and come back - and even for someone to be dealing with it for 9 months.

I'm not totally sure about EMG results, but mine did show a slight Demyelination and my Neurologist said that she was surprised that the Myelin Sheath that surrounds my nerves were affected. She wanted to do a nerve biopsy and start me on IVIg, but neither of those have happened, hence the new Neurologist. After that she was sort of weighing between Disulfiram Toxicity and CIDP... my EMG did look like Disulfiram Toxicity. Again, no idea what that means. I feel that all of my other symptoms have been all but overlooked.

Starting December 27th I became short of breath. I went in the hospital for the first time for it on December 30th. Had a blood gas test, all was fine. Was discharged. Went back in the ER about a week and a half ago b/c the breathing had not improved and I kept nearly passing out (would get covered with sweat but wouldn't actually pass out). Was again discharged. Finally I had the throat spasms and went to a new hospital, hence the new Neurologist. This is when I was prescribed w/ the Valium, until I could get in to see the Neurologist on Tuesday.

I have had my B12 and D levels checked, I've had so many blood tests and I'm the spot of health. I've never had frostbite. I did hear the Neurologist say something about neck weakness.

I have had 3 different Neuro-Op appts and it's just been such a waste of my time. This is the one thing I think I'm most jaded about. Maybe I need to find a new Neuro-Op or something.

One other strange thing that does happen (and I'm only bringing it up because it happened this morning) is I tend to have an influx of symptoms during that time of the month - I'm female. This morning I woke up and I was having really strange vision problems, my eyes feel swollen, still can't figure out what the problem is... and then I realized it was my period. Each time my feet have stopped working has been on the day of my cycle. Each big episode I have is on the first day of my cycle. Has anyone else experienced this? I'm sorry to all the guys out there...

I suppose my main question is what should I ask my Rheumatologist tomorrow and my Neurologist on Tuesday? I am beyond appreciative to your help and I hope someday I will be able to pay this favor forward to someone else on this forum.

To dewcole... have you ever received any sort of treatment? Has anything helped your symptoms?

Thank you.