Originally Posted by DinaRR

Good morning! I was so thrilled to stumble across this forum while trying to figure out what is going on with me. I was diagnosed with Paget schroetter syndrome in June 2010 after I hit my collar bone. Ultra sound showed 4 veins clotted from my jugular to my finger tips. My surgeon did the balloon to open the vein back up. 2 weeks later he removed part of my first rib. After my surgery he told me he had some issues due to no fatty tissue, so my scar is bigger than expected. I was sent home the next day with no limitations. Day 4 post op I had a vein rupture. The emergency room was instructed to put a pressure pack on it and I went to see surgeon the next day. He said everything looked good, took pressure pack off and took me off my warfarin, with instructions to start pt. I noticed 8mo or so ago that I can do minimal with the arm on that side without it falling asleep. The headaches, arm and shoulder pain are getting to be constant and is definitely interrupting my sleep. The veins around the area and on my shoulder do bulge a little after using my arm. 4 days ago I thought I was coming down with the flu, I was very lightheaded, which caused nausea. The lightheaded has not gone away and is getting worse. I work retail, so I'm very active on my feet all day, by 4pm I literally go home to bed I'm so miserable from the lightheadedness. I'm wondering if I'm having some post op complications? I do not want to go back to my specialist as I felt he had no bedside manners and answering my questions seemed to be a waste of his time. Any suggestions, advice anything would be greatly appreciated! Thank you for your time.