Hi Buckhorn24,
I'm sorry that this does not address your question at all, but I have a question for you. My daughter also has CRPS and migraines and her doctor was considering a DHE treatment. However, she decided not to give her the treatment because a previous patient with both CRPS and migraines had a strong reaction to the DHE -it caused significant and lasting pain at the site of the IV for the infusion. The doctors believed that the irritation that DHE causes and most people at the infusion site was much more significant in this prior patient because of her CRPS. Although this prior patient had a good migraine relief and the pain from the infusion has slowly going down over a period of months, The doctor has decided she's not willing to risk of flare in my daughter. So I have two questions:
1) Did your daughter have any significant pain at the infusion site from the DHE treatments? Or any other significant side effects that might have been unusual and attributable to her CRPS?
2) Did she receive any benefit from the DHE treatments? If so, were they just not significant enough, or not long-lasting enough?
Thanks,
Lori
Quote:
Originally Posted by Buckhorn24
My 14 yo daughter with full body rsd has had severe migraines and nausea for several months, had a few treatments of DHE in the hospital and missed most of her freshman year. Her neuro suggested a procedure of combined occipital nerve/supraorbital nerve stimulation. Basically implanting a battery pack in her hip, running leads up the back, neck, side of the skull to the forehead delivering a charge to stop the pain. Claiming an 80% success rate. First step is to test it with leads in the forehead and external battery pack, then permanent implant if it works.
We have to do something, between the RSD and migraines she rarely leaves the house anymore. At least if we can get the migraines gone, she can usually deal with the RSD and make it to school most days.
But, I'm really concerned about the incisions to implant the battery, runnning leads under the skin all the way up her back, and how it's going to impact the RSD.
Anyone hear of this process? Any thoughts on the surgery and RSD?
I can't post a link yet, but if you google Reed migraine you'll see the procedure.
Mike
|