There are no words to express the hellishness of this condition and its pain to others. This might be because we don't really understand it ourselves. The pain is just another symptom of everything that's going on and it ebbs and flows like the tide. Sometimes it's the problem and other times it's just a part of the problem. Most of the time it seems like all of the problem leading us to misapprehend its nature and importance. Fear of the pain can be worse than the pain itself and this problem can increase as if we protect the affected limb and use it less and less.

There's little doubt that the solution is to try to find a way to use it and that the means is to find ways to lessen the pain by distracting oneself and through medication if any help. There always seems to be a heavy toll on the mind and the self and this effect seems direct even though doctors are unanimous in saying it's indirect. The disease is largely about coping and, God help us, we sometimes only get help to the degree we fail to cope. Good luck in finding relief and keep fighting. There should be some better medications down the line and it might not be too long till it can be eradicated altogether.