Quote:
Originally Posted by Stellatum
Today I feel like I have Plain Old MG. Yesterday, I got up early and took my kids to a special Mass in a city I'm not familiar with. Then we stayed for the reception, where I was having such a good talk with a friend that I didn't want to interrupt it to tell her I had to sit down. Then we got home and I baked and decorated a fancy cake for my daughter's birthday. Then we went to a friend's house for dinner. Usually, I would only do one of those things on any given day, and not all three. By 10:00 I was in a state of utter, utter exhaustion, and had to be helped upstairs.
This morning my first try at sitting up in bed failed. My arms are tiring quickly as I type this, and while I don't have double vision, it's a strain to keep my eyes focused (hello, Mary Walker phenomenon). I hope that next time I start questioning whether activity is a trigger for my weakness, I'll remember writing this.
Abby
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Hi Abby,
I just wanted to start off by saying I have no idea what's going on or what's appropriate in your case and this is not to be considered advice. But because you never know who's lurking and following and learning, I wanted to point out that weakness on waking after overdoing it the day before is very consistent with HKPP.
I smiled a little because you usually say that your normally stronger mornings would be atypical of HKPP, yet here you have a day with morning weakness and based on that, conclude that it's straight MG. It can be complicated; there are 3 people on the HKPP forum who are believed to have both periodic paralysis and some form of myasthenia. A fourth was originally misdiagnosed with MG, now has genetic confirmation of HKPP, but had had a positive response to Mestinon that was measurable on EMG readings. (I know you're not helped by Mestinon, I'm just pointing out how muddy the waters can get.)
Exercise can definitely be a trigger for channelopathies as well as MG. Here's an article you might find interesting.
http://www.sciencedaily.com/releases...0117111844.htm