Now's a good time, I think, to revisit Lindy's thread.

Reading Nan Cylist's account, in another thread, of running down the road to pick-up her cross country skis even though, as she pointed out, she found typing difficult, resonated with my own experience. I can run, but I find it difficult to type; I can play tennis, but I find it difficult to get dressed. My posture is bad. I also have many non-motor symptoms: constipation, urinary urgency, etc. Interestingly, although all my original symptoms were on my right side, my lefthand tremor is now worse than my right.

In effect, I have upper body Parkinson's - almost 8 years from diagnosis I have almost no symptoms in my legs, but both stiffness and tremor in my arms.

To try to capture what I mean on a scale of 0 (no symptoms) - 10 (symptoms are so bad that you can't do anything with that part of the body), my scores would be:

my best, "on" results
Upper body, left stiffness=1, right stiffness=4; left tremor=1, right tremor=1
Lower body, left stiffness=0, right stiffness=1; left tremor=0, right tremor=0

my worst, "off" results
Upper body, left stiffness=4, right stiffness=7; left tremor=8, right tremor=3
Lower body, left stiffness=0, right stiffness=2; left tremor=0, right tremor=0

I'll be interested to hear the experience of others.

John