I would say my symptoms were primarily on my right side but I presented with a tremor and not 6 months later had a painful dystonic foot that emerged at first during exercise then would crop up from just walking.

The most I have ever noted top or bottom weakness is that in between med dosages, I have noted either upper or lower body weakness. It is like there is competition for levodopa. Either my legs feel detached, so weak I cannot walk, or I struggle to sit up in bed because arms are limpid. This happens maybe once a day. Rarely is there any tremor then.

I only have dystonia upon waking and stil confined mainly to right foot but right leg can go dystonic now too.

I do get motor blocks with both legs feeling beyond weak, and I am cannot walk. This appears independent of med dosage and I think is panic, glucose, or potassium related.

Laura

Symptoms for at least 12 years but diagnosed in 2008 when meds needed.
Age at diagnosis: 40