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Old 01-22-2013, 12:36 PM
CRPSsongbird CRPSsongbird is offline
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Join Date: Nov 2012
Posts: 407
10 yr Member
CRPSsongbird CRPSsongbird is offline
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Join Date: Nov 2012
Posts: 407
10 yr Member
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Quote:
Originally Posted by NerPain4 View Post
[quote/]

Was it the Oxycodone that you were instructed only to use every 12 hours ? That doesn't sound like a realistic pain plan for someone in constant pain.....the med only lasts 4 to 6 hours.

I hope that you are okay.
ave pain mgmt doctor that you see every month, of course you are going to run out of meds! It is an impossible situation you are in. I really hope you get the care of a regular Pain Management doctor that helps you.[/QUOTE]

Believe me the Oxycodone didn't help much for more than 4-5 hours truly. It DID help though it just needed to be a tiny bit stronger and last longer. I would've been fine with the same strength if it had lasted a LOT longer. But that was prescribed by the doctor who finally admitted a couple weeks ago the he has "no idea how to treat me/CRPS" so after about 3 months of severe pain "gee thanks doc!"

And unfortunately I seem to have SEVERE reactions to Gabapentin, Lyrica, and Cymbalta. They are starting to run out of options for "other" medications. My new PCP id trying to co-ordinate things better. I go to see a neurologist 03-07-2012 (soonest appointment ) and is referring me to a actual "Pain Clinic doctor" as well. Hopefully I will get better results!

On the "er" reference,. If I had a better pain management team/medicine. I would not go to the ER at ALL!! But when my standard level of pain isn't being treated to a satisfactory level, and I have a "flare" as I call them.....I go to ER or spend a day or two in tears. The last doctor who saw me was along the lines of what you are talking about. He didn't prescribe me anything but DID help with the immediate pain. It has spread to my knee and feet, so at the time that was new and extreme so my fiance took me in.
I could barely walk. That has calmed down considerably. My new PCP seems to think it might have been a "flare/fluke" as he said the receptors in our brain for the leg/arms are very close. Since I was having a huge flare in my arm it might have triggered my legs for a while. And as soon as I can get better constant pain help, I am hoping I won't keep having so many flares.....ok well I am going to stop typing now...lol my arm/hand is starting to get angry!! I am also being forced to part time at work as I can't work very well anymore, as typing is like 70% of my job.....grr.


Thanks to everyone!
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"Thanks for this!" says:
ginnie (01-22-2013), Mark56 (01-22-2013)