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Old 01-22-2013, 09:27 PM
loretta loretta is offline
Senior Member
 
Join Date: Feb 2007
Posts: 1,090
15 yr Member
loretta loretta is offline
Senior Member
 
Join Date: Feb 2007
Posts: 1,090
15 yr Member
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Quote:
Originally Posted by michael mengo View Post
Hello Alison - I know this is an old post but I see you are still on here by your profile and I also sent you a friend request. I think your mother wrote this thread? Anyways this sounds just like my son and we are in dire straits for some relief and/or a cure? My son had Salmonella in August and after treating it with antibiotics it cleared up but left my son with CRPS. He started fainting a couple of months later which we thought was his way of dealing with the pain. He is now fainting up toward 40 times a day. When he faints, it last anywhere from a few seconds to a few minutes. As I am sure you know this really can screw you life up. On top of the pain now my son must deal with constantly passing out. He used to be able to go to school and just muscle through the pain and then he started losing consciousness which made school impossible. We live in Oregon and my son will be going to Randall Children's Hospital for a 3 week, in patient, RSD intensive physical therapy program on Feb. 4 2013 We are praying that it works but are doubtful has he passes out so much. My sons, Max use to be a straight A student with lots of friends and loved school but he has only managed to be able to attend for two weeks with the pain before he started passing out.

Is there anything that you and your mom found useful to minimize or get rid of the fainting (syncope) episodes? Are you still having them today all these years later? I would love to correspond with your mom if at all possible to compare you guys (you and my son) and see what are some commonalities.

Thank you Alison
Michael Mengo
Hi Michael, I am so sorry about your son and RSD. I hope his results at Randall go well for him in the PT program. I have syncope epidsodes and know how scary they are. RSD is a neurological condition. It is a disregulation of the autonomic nervous system. That is why the syncope occurs for some of us. We have no control over the body temperature, heart rate, and blood pressure among other areas of our body. If you research autonomic nervous system- it discusses the sympathetic nervous system and parasympathetic nervous system, vegas nerve and their functions. It explains why this 'syncope' can occur. I have had several episodes of passing out. I make sure I keep hydrated,
I have a blood pressure kit and keep track of my blood pressure. When it starts dropping, I take precautions to be near bed.
I was diagnosed in Oregon, but don't live there any longer. Hope all goes well with your son's treatment. loretta
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