Quote:
Originally Posted by AnnieB3
Anacrusis, For people who get such severe symptoms while flying, it's recommended that you have oxygen while on a plane!
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BTW......
Had an appointment with the phd head of neurology department at the hospital and just mentioned these problems and previous problems with breathing´in´
He said that if what I had was neurological then it would have shown on the electrophysiological tests. And I did not match with MG patients because I had had breathing problems during the day and not really anything at night.
He said that Mestinon can work in a placebo fashion when questioned why it was working so well with my breathing symptoms.
I sincerely hope that was the last time I have this trouble flying abroad and if I do get it again then it will be on the
outward journey and goodness forbid
not on the return flight back home.........
But I
am allowed to call the hospital and have the chance to´prove myself´with a tensilon test, new SFEMG or some sort of blind Mestinon test or other if symptoms get worse again.
Thanks,
Anacrusis
PS
I didn´t bother to tell him I was scheduled for a pulmonologist appointment in a couple of days
because I´m quite sure he thought that it wasn´t necessary.