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Old 01-23-2013, 06:29 AM
Anacrusis Anacrusis is offline
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Join Date: Apr 2012
Posts: 478
10 yr Member
Anacrusis Anacrusis is offline
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Join Date: Apr 2012
Posts: 478
10 yr Member
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Quote:
Originally Posted by AnnieB3 View Post
Anacrusis, For people who get such severe symptoms while flying, it's recommended that you have oxygen while on a plane!
BTW......

Had an appointment with the phd head of neurology department at the hospital and just mentioned these problems and previous problems with breathing´in´

He said that if what I had was neurological then it would have shown on the electrophysiological tests. And I did not match with MG patients because I had had breathing problems during the day and not really anything at night.
He said that Mestinon can work in a placebo fashion when questioned why it was working so well with my breathing symptoms.

I sincerely hope that was the last time I have this trouble flying abroad and if I do get it again then it will be on the outward journey and goodness forbid not on the return flight back home.........

But I am allowed to call the hospital and have the chance to´prove myself´with a tensilon test, new SFEMG or some sort of blind Mestinon test or other if symptoms get worse again.

Thanks,


Anacrusis

PS
I didn´t bother to tell him I was scheduled for a pulmonologist appointment in a couple of days
because I´m quite sure he thought that it wasn´t necessary.

Last edited by Anacrusis; 01-24-2013 at 01:37 AM. Reason: doctor´s title correction
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