Hi NeuroTalkers,

I hope all of you are doing well today. This is my second set of posts. I went to a new Neurologist yesterday and rheumatologist the day before - (I tried posting a link to my previous thread, but it wouldn't allow me because I don't have 10 or more posts yet) - but if you click on my name, you can see my earlier post - I posted it in 2 forums.

I was told that I likely won't have a condition that is out there... so no MG or CIDP or anything like that, maybe some variant? I know my Neurologist brought up multifocal motor neuropathy which I had never heard before. They're trying to decide if my condition is inflammatory or autoimmune response so they can figure out whether to treat me with IVIg or Steroids.

My question today is, I have had progressive muscle weakness. On Monday I had 10 vials of Blood drawn and on Tuesday I had 14 vials of blood drawn and since then I am so weak I can barely function, I thought I would wake up today feeling stronger and I don't, my legs are so weak.

Has anyone had this experience and do you know if this is something that will take my body a long time to bounce back from or do you know if I will progressively get weak from? My Neurologist treats outpatient so I am hesitant to go inpatient for treatment, also I live in NYC, so hospitals have not been willing at this point to treat me in patient.

I am going today for pulmonary lung function tests to determine whether I need to get a Phrenic Nerve test and I'm just worried about my energy level. I suppose I'm looking for someone who can relate.

If you can relate or have any thoughts, will you let me know? I would love to hear from you.

I wish everyone in NeuroTalk all the best.