Oh, boy, do I know and feel your pain and frustration!

You should see that ONE photo of an MG patient on that TWO page spread in their medical books. Okay, sometimes it's two photos. It's an exaggerated photo. And they get the oddest looking people (no offense to them) for the photos. I also think the photos are decades old.

MG and, therefore, ptosis, can be anywhere from mild to severe to dead. My ptosis didn't get to the point of not being able to open my eyes more than a slit until my MG crisis. Some people have that happen daily. Idiots.

Students are taught in medical school that what they are being given are the "right" answers. Period. If they were taught all of the variables of pathophysiology, diseases, presentation and treatments, they'd be in school for 20 years. That's why there are specialists.

If one of those four doctors who said mild ptosis is not indicative of MG is a neurologist, they need to go back to school.

Have you seen a neuro-ophthalmologist? Sorry, I can't remember. They have objective tests to figure out if you have double vision, if it's the binocular double vision of MG (goes away when you close one eye) and if your eyelids and/or eyebrows fatigue/weaken.

I took a photo of my face before my MG crisis and a couple of weeks after treatment. I looked like I'd had a facelift. Before, my entire face - even my nose - drooped. I like to call it nose ptosis. What excuse would all of your doctors give for my nose to droop? Humidity?

So, if you haven't already, take some photos of your face before and after having Mestinon. Make sure the tilt of your head, the lighting and camera exposure are the same each time.

This is all so incredibly stupid that I feel like taking another shot at enacting new legislation. This behavior by doctors is ABUSIVE. Workers are protected from abuse. Children are too. Why aren't patients protected from abusive doctors?!! Medical boards often side with the doctors when faced with such allegations. No, they shouldn't have an unfounded complaint that turns into a "witch hunt" but they have got to stop hurting their patients. They've sworn not to, right? "Allegedly."

Call your insurance company and see if they have any patient advocates.