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Old 01-24-2013, 04:40 AM
Anacrusis Anacrusis is offline
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Join Date: Apr 2012
Posts: 478
10 yr Member
Anacrusis Anacrusis is offline
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Join Date: Apr 2012
Posts: 478
10 yr Member
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Quote:
Originally Posted by seishin View Post
Now, the neurologist (who's not previously encountered MG) is wanting to step back from calling it MG until I get more proof.
Hi seishin

Even the practitioner who took my SFEMG back in September was totally convinced I had MG symptoms during the actual test even though the test turned out negative.

The neurologist on the other hand told me I needed at least ONE positive test before I could get a diagnosis and Mestinon wasn´t going to cut it since it can work like a placebo effect.

I can go back for a tensilon test to´prove my MG´anytime - but then, who knows, I´m quite sure I could manage to fake that one as well I was told I could continue taking Mestinon as placebo effect
(He did not believe it could be working when only taken on a symptomatic basis)

Luckily I´m feeling better and will of course be thankful for that quite soon.

Anacrusis

PS
I so dearly hope your upcoming SFEMG is positive - it will make life much easier. Then we can ban the test after you have had it

A negative SFEMG is like coping with another disease on top of the one you already have
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"Thanks for this!" says:
southblues (01-24-2013)