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Old 01-24-2013, 05:25 AM
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seishin seishin is offline
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Join Date: Nov 2012
Location: Austin, TX - USA
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10 yr Member
seishin seishin is offline
Junior Member
seishin's Avatar
 
Join Date: Nov 2012
Location: Austin, TX - USA
Posts: 94
10 yr Member
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Quote:
Originally Posted by Anacrusis View Post
Even the practitioner who took my SFEMG back in September was totally convinced I had MG symptoms during the actual test even though the test turned out negative.
I hope the upcoming neurologist is of a similar mindset.

Quote:
I can go back for a tensilon test to´prove my MG´anytime - but then, who knows, I´m quite sure I could manage to fake that one as well I was told I could continue taking Mestinon as placebo effect
(He did not believe it could be working when only taken on a symptomatic basis)
Grrrr!!!!

Quote:
I so dearly hope your upcoming SFEMG is positive - it will make life much easier. Then we can ban the test after you have had it
Yes, let's!

Quote:
A negative SFEMG is like coping with another disease on top of the one you already have
The emotional strain is the hardest part.
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