Raven I want to mention 2 things. First when I first got my DX I went to see a neuro-muscular Dr and the first thing he said when he saw my med list was "NO STATINS PERIOD". The second thing is my doctors have mentioned PLEX several times but my wife says no so far because she feels it is too invasive. I'm sure your condition is worse than mine and decisions like this call for a lot of thought. In my case at my age the cancer risks are a minor factor but if I were younger I would consider it more.
Have faith that whatever decision you make will be the best.
Mike