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Member
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Join Date: Nov 2012
Location: Ontario, Canada
Posts: 267
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Member
Join Date: Nov 2012
Location: Ontario, Canada
Posts: 267
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brain just isn't the same?!
My neuro psych wants to do very expensive testing on me. ($2000+) and I have no coverage. She is hoping my LTD will pay for it because she believes it is beneficial to show what I need to work on in order to get back to work someday.
I told her I didn't think I was doing too badly cognitively because I don't seem to have the obvious memory problems that a lot of you talk about. She told me I probably was not aware of how many issues I am really having because I am not trying to accomplish anything but rest right now.
The two-three hours that it takes me to make supper should have been a clue to me! She suggested I go on Lumosity and try out their games. Wow what a frustrating, depressing wake up call! I have always been in the top 10% of all my classes and on any types of tests, etc.
I thought I was doing not too badly on the games and was grateful I was able to do them at all but when I saw my scores compared to others my own age... I wanted to cry. When I was doing the games I had actually thought... see... no problems.... I am in the bottom 25% and on speed I am actually below 14%. I sent her the results and she said it was just as she suspected.
I thought that as I got used to the games, where the keys are etc., I would get better but after a week I'm still doing really poorly. I am at about 7 months now since my accident. Will this stuff come back? I know that I was told I would have to learn a new way of thinking or a new "norm" but I thought I was doing better than I am.
Has anyone else tried Lumosity and had any success using it as a learning aid? They are doing studies with it right now with Veterans with tbi's and it will be interesting to see what the results are.
On a side good note... I started vestibular therapy this week and have not had the big increase in symptoms that they were worried about. I'm hoping to get my dizziness under control so I can start walking again.
Oh and I also have an appointment at the end of February to see a concussion specialist neurologist at a sports clinic. It's "return to play" focused but in order for her to return me to play she has to fix me a bit first right! Still no appointment date to see the neuro ophthalmologist.
Wishing you all a good day,
CC
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I'm a 39 year old, female, accountant. On July 2, 2012 I crashed my bike at the end of a 65KM road ride. I was fine that day but woke up the next morning to my current world.
Ongoing symptoms include: dizziness, blurred vision, light and noise sensitivities, cognitive problems, uncontrollable emotions/depression/anxiety, headaches (but they're getting better), mental and physical fatigue, difficulty communicating and sleep disturbances.
Currently seeing a fabulous Neuro Psychologist and vestibular physiotherapist and hoping to soon see a neuro ophthalmologist. I am currently doing 20 minute stationary bike rides daily, 20 minutes of meditating, 15 minutes of Lumosity and lots of resting. I have not been able to work or drive since the accident.
The things that have helped me the most since the accident are vestibular therapy, gel eye drops (for blurred vision, sensitivity and dryness), amitriptyline (10mg), and meditating. I am finally starting to see some slight improvements and am hopeful!
My brain WANTS to heal itself... I just have to let it and stop trying to get better!
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