Thread: Neuropathy Help
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Old 01-26-2013, 02:26 PM
Kitt Kitt is offline
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Join Date: Aug 2006
Posts: 4,440
15 yr Member
Kitt Kitt is offline
Grand Magnate
 
Join Date: Aug 2006
Posts: 4,440
15 yr Member
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Quote:
Originally Posted by BDEye51 View Post
I have peripheral neuropathy - inherited (mother and 2 sisters) small nerve even though only large nerve is supposed to be inherited.
I have tried the anti-convulsant meds on your list but had severe mental confusion such that my patient record lists me as allergic to anti-convulsants; then onto plus a number of pain meds like Lidocaine patches (allergic to the adhesive), spinal injections, Fentanyl patch, Percocet, and even Butrans (suboxone) patch without relief and lucky me some of the nastiest side effects. Have tried Trileptal & Elavil, Valium and more. I am trying R Alpha Lipoic Acid 1200 mg for the last 2 months but no significant change.
Read-up on Chronic pain and the use of pain medications. A very misunderstood field. Also be open to alternatives - yoga, exercise, meditation, etc. Be very diligent re controlling your diabetes as the only cures I have heard about are for some people with diabetic neuropathy and who seriously control their diet, monitor their sugar levels etc.
I assume you have been tested for other causes like heavy metal (lead) poisoning, B-12 deficiency, trauma and a few other known or suspected causes. Usually a specific cause is not found.
If the pain impairs your sleep, ask for medications to help. If you don't sleep, it impacts you in many ways.
My mother's pain ended when her feet & ankles gradually become numb and then the problem was difficulty walking. My neurologist has noted a slight loss in muscle control & thinks I may also have restless leg so I am trying Mirapex - usually used for Parkinson's disease - to maybe take the edge off the pain (nada so far).
And finally, ignore the ads that claim to cure neuropathy. And if you use Google or just about any search engine you will begin to see ads for neuropathy cures at every opportunity because they have learned your preferences and search habits.
Hi,

What type of inherited neuropathy do you have if I may ask. Thank you.
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