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Old 01-27-2013, 11:22 AM
hankster1 hankster1 is offline
Junior Member
 
Join Date: Jan 2013
Posts: 14
10 yr Member
hankster1 hankster1 is offline
Junior Member
 
Join Date: Jan 2013
Posts: 14
10 yr Member
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Hi pingpongman, 4-eyes, and AnnieB3. Thank you for your experienced, thought out, assuring and informative responses. I see that MS has come up in two different responses today. I have been told multiple times that I have been absolutely ruled out and it would be almost impossible for me to have MS.

What the Neurologist told me is that she believes I won't have MG. She said I have symptoms relating to Multifocal Motor Neuropathy, but I'm not a fit for it. She thinks I won't be a fit for anything. What she wants to figure out is if this is inflammatory based or autoimmune response based so she can treat me with either IVIg or Steroids. She told me treatment will come before a diagnosis. I'm 100 million percent happy with this, I just want treatment.

As I said, I have been to the ER 4 times and each time I have been sent home and I haven't died. Yes, my symptoms have gotten worse, but I feel as though each time I went too early. I feel like to not cry wolf, with this new Neurologist, I need to wait until the correct time so that they I am actually hospitalized instead of being sent home without any help. Also this Neurologist only treats outpatient, not inpatient. So I want to wait until tomorrow to talk to her to see if she will help me get in to the hospital so that I can see a Pulmonologist, get my LP and my MRI all inpatient.

I've been getting my blood ox tested fairly frequently and it can go down to 92 and after rest and no talking or walking it can go up to 97. My BP is always great. Just so you know, I'm normally a healthy 30 year old and I climbed a 15,000 foot mountain in October.

Even if I don't have MG, I wonder if I am on track for some sort of MG related crisis. It's starting to feel that way. Just due to the increasing frequency of my symptoms. This morning it's my eyelids, they are barely opening. And the daze that I am always in is so hard to blink out of. I'm also walking really hunched over. The hunched walking has started in the last week or so since I had the blood drawn.

Anyway, the Neuro will be getting a call first thing tomorrow morning. I live close to the hospital. I have great insurance so I can call 911 if I need to and I am not alone. I wanted to write that to reassure you guys.

So glad football isn't on today. Today will be guaranteed stress free. I'm also very glad you guys have also found this forum and I hope to share my optimism with you when I am on the other side of this.

All the best!
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