Originally Posted by tkrik

Tara - I am so sorry you are going through limboland. It may take a while for any lesions to appear. Getting tested for Lyme, B-12, and vitamin D is also a good place to start. Sometimes it takes time to get a diagnosis for some conditions. Hang in there and keep pursuing a dx. Don't give up.

Rob - Do they check to see if you had a slipped disc and/or pinched nerve? I ask as you seem to be having lower back issues that could definitely explain the lower extremity issues as well.

Keeping Faith - You say there was "a couple areas of white matter." I'm not sure what you meant by this as white matter is a normal part of the brain. We all have white matter. Did you mean a couple of areas of white matter lesions? Additionally, migraines aren't always felt and they do cause lesions. Some people have auras without migraines. I'm also wondering if the capillary telangiectasia is causing some headaches and thus the lesions. Not sure if that would happen. I also would ask to be referred to a vascular specialist to check that out. Do you experience any type of headache? Keep after your dr. and do follow ups regulary. Something is definitely going on. Keep a journal of you symptoms if you can and bring that to your next appointment. Keep your GP/PCP involved and informed. Make an appointment with him/her to discuss some of the symptoms as well.