I'm in a similar situation as Hankster where an appointment with a MG-expert neuro is coming up but respiratory issues are increasing in the meantime. (can't open jaw wide, not maneuvering food well with tongue, mucus & food stuck in throat, pressure pain around sternum, ache in core muscles, exhalation is cut off abruptly when sitting up or lying down, feel a pressure in my head, can't sleep easily due to feeling like I'm not getting enough air,...)

Because of three bad experiences in previous visits to E.R., I hesitate to go again since they've sent me home basically saying they thought I'm a hypochondriac.

I had hoped to make it until the Feb 4 appointment but I don't think I should wait. If I do as I'm planning and search for a pulmonologist or doctor tomorrow, what are the tests I should make sure they do so as not to send me home with a false negative? I know about the arterial blood gas but should I ask for or say anything else?

Thanks.