Quote:
Originally Posted by Neurochic
Why should I be disadvantaged just because I have a very rare presentation of a rare condition? Don't I deserve the same level of care as someone with a common condition? It's professional laziness and an astonishing lack of interest in gathering new knowledge.
Sorry , I'm away again! Now you've got me started on this, I'm venting my spleen!!!
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Hi Neurochic!
Vent all you like - it is really very kind of you to come over here and share your examples and your story (which I´m sorry has been such a frustrating one for you) Much appreciated. Yes you should NOT be disadvantaged and that is why I would hope to not ever have the diagnosis of a conversion disorder, because if we think we have enough bad examples of MG treatment and lack of knowledge it would be even worse where I live being treated with conversion disorder. They would have absolutely no idea whatsoever how to handle it!
Thanks so much for visiting & sharing
Anacrusis