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Old 01-28-2013, 06:02 PM
reynolds_km reynolds_km is offline
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Join Date: Sep 2012
Posts: 34
10 yr Member
reynolds_km reynolds_km is offline
Junior Member
 
Join Date: Sep 2012
Posts: 34
10 yr Member
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Quote:
Originally Posted by sugrkiss View Post
What is this drug? Does it work for people that are on mestinon? And does it work for those that mestinon doesn't help? Sorry for my ignorance on this subject. Also have you alerted the mg of USA to help?
Thank you
Jess
I have asked MG foundation to help several times, they have declined my requests.

so Mytelaste, like Mestinon is a derivitive of Prostigmin. Prostigmin was the first drug for MG, and it was pretty rough on the stomach and didn't work very long. Groups at two different colleges worked to create a better medication. One group created Mestinon, the other came out with Mytelase.

In my research I have found studies showing that when given a choice between the two drugs 70 percent of MG patients preferred Mytelase.

There is less gastrointestinal upset on Mytelase. The effects last much longer and patients don't get the wild swings in strength you often get with Mestinon.

With Mestinon I was taking a pill about every six hours and a timespan at night. I woke up just dragging and had to wait for the pill to kick in before I could do anything.

With Mytelase I take half a tab every 8 hours. I can get up get dressed and go. I am also able to ride my road bike a couple of days most weeks. It's not always good, but most days are pretty darn good.

I don't miss waiting for the Mestinon to start working. The Mytelase is always working, at least it is for me.

For some reason in the 50's all mentions of Mytelase stops. The only thing I find is a couple of notes from Neurologists saying they won't prescribe it because it is an inferior drug. I have no idea how they decided that.

it is really easy to overdose. Since I live in a very rural area I carry the antidote with me. Not any worse then the people who have to give themselves a shot after a bee sting.

I always tell people, Mestinon is an old Ford Pinto, and Mytelase is a Ferrari.

I am a big fan. It changed my life.
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