Perhaps Alice could access it but the problem is that none of us can without paying for it, even if the link to it is put up. Why don't we stay to what we can post on the topic?
No one should have to be treated as poorly as you were. One thing I've asked family members to help them understand MG is whether they can remember what they felt like when they were coming out of general anesthesia. You can't move or breathe well then either. If that happened to them from a disease, how would it make them feel? Would they think that was normal?
Time is of the essence in those situations for MGers because our MG doesn't "wear off" like anesthesia does.
Annie
Here is a similar PDF.